I went to the doctor yesterday and everyone is so caring to want to know how it went, so I thought I would post the details here.
I'm on the same medication...yes...still on steroids. The doctor said he was going to take me off the steroids yesterday, but since I had more symptoms on my trip to the States, he said the disease is lurking and it would be foolish to decrease any dosage. Oh well, at this point I don't get my hopes too high. Some day I will be off the steroids!
I told him about the numbness I have been experiencing in my right toes (all, except the large toe) and so he had me do some physical tests, which were fine and then he sent me for an electroneurography. Basically, it tests your nerve strength and tests to see how fast the response time. If you've ever had the test, it feels like you're having needles driven into your skin over and over....
Anyway, all tests came back perfectly normal, but you can't test the most distal nerves, which are the ones affected. So, I'm going to wait and see what happens. I have no other concerning symptoms, so he hopes that it just mysteriously goes away just as it came.
The good news is that I only have to get my blood tests done once a month now! This is a huge relief after getting it done weekly for two months and before that every two weeks since July. It looks as though my body is tolerating the immune suppression medication well, other than the hair loss. He said that might start to get better in another month or so...let's hope I still have some left by then!
Other than that, life around here has been busy with Christmas preparations. Since we were in the States for nearly the whole month of November, I'm behind. Everything will be late this year, but that's not the point of Christmas anyway.